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Posted

If you don't know what is going on with my family it is here

 

http://www.xtremeidiots.com/fora_topic.asp?tid=7359

 

My niece, Juliett, went back to Doernbecher Children's Hospital in Portland, Oregon for an update on her brain tumor.  We got the MRI results back this morning and the doctors are baffled. Her tumor has not grown at all!!!  This is usually a very fast growing and rare type of tumor and yet there has been zero growth.

 

It has been over 2 months now and they said that they are absolutely "baffled". They said that they have never seen this happen before with any DIPG patient ever.  They want to know everything that she has been doing, they want to know what her diet is and what she has been exposed to.  They told us that everything that we have been doing, to keep doing it.  They are conducting a "Stage One Research Study" (I have no idea what that means, I don't know crap about medical stuff) and people are coming to Portland from Philadelphia, PA and the "New England Journal of Medicine", they want every bit of information they can get.

 

To everyone that has been praying for her,  thank you and ask if you could continue to do so.  Our prayers have shifted slightly to thankfulness. We are not out of the woods and we know that, but we are thankful and hopeful and tears of happiness are much better than the other kind lol

 

Thanks all for everything!

 

 

 



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Posted

btw thanx to the "Make a Wish Foundation" she got to meet Mickey Mouse in Disneyland last weekend Smile

 

mickey1

 

mickey2



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Posted

AMEN!!!



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Posted

 GOD IS GREAT MAN ND THATS WHO WE NEED TO THANK IT IS SO WONDERFUL TO HEAR THAT NOT ONLY HAS THE TUMOR NOT GROWN BUT THE DOCTORS ARE BAFFLED ND WILLING TO TO LEARN FROM HER ND MAY GOD REVEAL WHAT SHE HAS BEEN DOING SPECIAL SO THAT SOME OTHER PERSON MAY BENIFIT AS WELL FROM THE KNOWLEDGE THEY LEARN FROM HER....MAY SHE CONTINUE TO LIVE A VERY NORMAL LIFE ND PLEASE DO LET HER KNOW SHE MAY JUST BE ABLE TO HELP THOUSANDS OF PEOPLE...SHE IS A GIFT ND A BLESSING TO US ALL....

 

 

All the Best

loADER



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Posted

she is a special child ..Laughing..God has other plans for her...She will be with us a while...so keep making her smile..is a great remedy...

 

GOD BLESS HER ALLWAYS..



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Posted

Brilliant news mate I am so happy for you and your family, may the sun always shine on  Juliett  and keep her smiling, My thoughts and prayers are with all of you.



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Posted

Will keep praying for you and the precious lil angel.  :)



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Posted

Great news! I will keep a praying.



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Posted

Awesome. The power of prayer



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Posted

Very exciting news to share. I'll keep my prayers with you and Juliett. :)



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Posted

wow, I'm glad ur family was given some joy through such a hard time. I hope things work out for her and your family and that things keep looking up.



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Posted

That is great to hear! I am glad she is doing so good! Please keep us updated on how she is doing! We will continue to pray!



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Posted

 I,ll keep praying that the news we hear is good news.I hope she continues to improve. Cool



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Posted

That's excellent news! Very glad to hear it Primal.



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Posted

Thoughts and prayers bro !!!!!!!!!!!!!!

REDBULL.......



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Posted

That is some great news. Her and the family will still be in our families prayers.



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Posted

good to here hope she keeps feeling great



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Posted

Hey thats AWESOME news! Laughing



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Posted

That is just outstanding news. Thanks for sharing it with us.



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Posted

Wow... a miracle....tears of joy.....Smile



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Posted

Keep us updated primal and we will all continue to keep our prayers going.......



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Posted

Glad to hear the news. Hope it keeps getting better.



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Posted

Absolutely Incredible Primal.....That is great news.  Thanks for sharing and please keep us updated.  How old is your niece?  Glad the Make a Wish Foundation was able to get her to Disney.   That is really cool too.  I have seen them do some really neat things for the kids.



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Posted

That is wonderful news...I will continue to pray that she has a full recovery...SmileSmile

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Posted

What wonderful news!  We'll keep praying...and hopefully she can keep the Doctors baffled for a very long time!

 

-Shadow


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